Williams Syndrome

Our oldest son, Brian Roy, was diagnosed at six month of age with Williams Syndrome.  That was in 1982, and not much was know about the syndrome.  We were given a pretty bleak picture of what our future would be like.  Today, we are pleased to say that much of what we were told was in error.  The past eighteen years have been filled with many blessings as well as hard times.  We have learned a lot since those early days.

Over the years we have served as area contacts, state representatives, and until just recently, regional directors for the south-central region of the Williams Syndrome Association (WSA).  The WSA has done much work over the years to not only provide support for the families, but to help educate the medical and educational communities about how best to help these special people.

It is our desire with this page to provide links to the most up-to-date information available about Williams Syndrome.  If you are a parent of a Williams Syndrome child, or know someone that is, and haven't made contact with the WSA yet, please do.  They can provide a wealth of information and keep you informed of the latest research, as well as any upcoming events in your area.

This page was last updated on 09/04/00.